Resources 

Websites
Ehlers-Danlos Syndrome (EDS)
Mast Cell Activation Syndrome (MCAS)
Dysautonomia/Postural Orthostatic Tachycardia Syndrome (POTS)
Chiari Malformation
Tethered Cord
Cerebrospinal Fluid (CSF) Leak
Mental Health
  • Mental Health Care Toolbox for EDS/HSD from the Ehlers-Danlos Society
  • The National Suicide Prevention Lifeline is a national network of local crisis centers that provides free and confidential emotional support to people in suicidal crisis or emotional distress 24 hours a day, 7 days a week. They can be reached at: 1-800-273-8255
  • Suicide.org Crisis Hotlines for Oregon
  • The Crisis Text Line, where you can text with crisis counselors, which can be helpful if you don't feel like actually talking on the phone
  • IAMAlive is an online crisis chat service with trained listeners, online therapists, and counselors whose volunteers are trained and certified in crisis intervention 
  • 7 Cups is a free, anonymous and confidential online text chat with trained listeners, online therapists & counselors, as well as self-help and self-care guides
  • Crisis Chat is for anyone needing to reach out. According to their website they are available for "Anyone who is depressed, despairing, going through a hard time and just needs to talk, including people who are thinking about suicide.  A chat visitor does not have to be thinking about suicide to use crisis chat.  Any life issue, whether it be depression, family issues, relationship problems, and financial issues, among others, may be discussed on Lifeline Crisis Chat. Chat specialists are here to listen and support you through whatever difficulties you may be having."
  • The NAMI HelpLine links to volunteers who can answer questions about mental health and lead to you additional resources, and includes volunteer attorneys. Their website also has phone numbers and links to resources for domestic violence and sexual assault.
  • Call 211 to be connected to local resources in your community such as support groups, therapy, emergency housing, veteran assistance, and assistance with food programs. 
  • The Trevor Project is a national organization providing crisis intervention and suicide prevention services in a variety of formats to lesbian, gay, bisexual, transgender and questioning (LGBTQ) young people ages 13-24 
  • The US Trans Lifeline 877-565-8860 website and hotline staffed by and for transgender people
  • MindShift is a free app for helping develop skills to deal with anxiety, stress, and panic. The app appears to be primarily geared towards children and young adults, but they have resources for people of all ages.
  • PTSD apps, videos, and more from the National Center for PTSD can help you learn about and manage symptoms that can occur after trauma.
  • An explanation of What It's Like Going to the Emergency Room for Suicidal Thoughts.
Advocacy
Past Educational Meetings/Conferences
  • June 28, 2014 Summer Quarter Educational Meeting - Rebecca Hurwood,  EDS and Acupuncture
  • April 26, 2014 Spring Quarterly Educational Speaker - Dr. James Kundart, OD on EDS and Eye Health
Books ​
​Articles & Videos​
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