Welcome to the OR EDS Homepage!
Our Mission Statement
"To raise awareness of Ehlers-Danlos Syndrome and provide support and education to all interested in the greater Oregon Area."
We're a non-profit organization representing a steadily growing group of patients with Ehlers-Danlos Syndrome and their families, friends and doctors in the greater Oregon area on the US Pacific Northwest seeking to support one another in our journeys with this challenging condition.
"To raise awareness of Ehlers-Danlos Syndrome and provide support and education to all interested in the greater Oregon Area."
We're a non-profit organization representing a steadily growing group of patients with Ehlers-Danlos Syndrome and their families, friends and doctors in the greater Oregon area on the US Pacific Northwest seeking to support one another in our journeys with this challenging condition.
- Meetings will be held monthly, supportive in nature, every other month we alternate between educational speakers and support style meetings, with a social event about twice a year. There is always a board member on site to moderate.
- To stay updated on the latest news and upcoming meetings, subscribe to our email list.
- Everyone is welcome to like our Oregon Area Ehlers-Danlos Syndrome Public Page on Facebook.
- To join our closed Facebook group, The Official Oregon Area Ehlers-Danlos Syndrome Support Group, click the JOIN button on that page and answer the questions. A diagnosis not required but we prefer our closed group be for those with EDS or suspected.
- Please contact info@oreds.org for more information.
Oregon Area Ehlers-Danlos Society is a registered non-profit.
Our tax ID number is 46-4274152. Thank you for your generous donation.
Our tax ID number is 46-4274152. Thank you for your generous donation.
Disclaimer
The information in this web site is provided as a free public service. The information contained is for educational and informational purposes only, and is not intended to serve as or replace professional advice, whether medical or otherwise. Consult your own qualified physician or other health care professional regarding your individual needs.
The information in this web site is provided as a free public service. The information contained is for educational and informational purposes only, and is not intended to serve as or replace professional advice, whether medical or otherwise. Consult your own qualified physician or other health care professional regarding your individual needs.